Caregiver Support Groups in Milwaukee WI

Caregiver support groups

Caregiver support groups offer family caregivers the opportunity to share their experiences, better understand their caregiver duties, roles and responsibilities and learn from others dealing with similar issues.

There are many caregiver support groups located throughout the greater Milwaukee WI area. If you can’t find a local support group through one of the associations or groups listed below, we suggest that you contact your local senior center, hospital, church, or visit your city government website. You don’t have to go it alone!

Caregiver Support Groups in Milwaukee

 

Alpha-1 Antitrypsin Deficiency

The Alpha-1 Foundation Support Group Network is a collective of more than 80 affiliated support groups including four Virtual Support Groups (Alpha-1 Families, Caregivers, Pre and Post-Transplant & Timely Topics). These groups are dedicated to providing support, education and information to people affected by Alpha-1 and to extending the mission of the Alpha-1 Foundation.

www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups

 

Alzheimer’s Association

The Alzheimer’s Association® is the world’s leading voluntary health organization in Alzheimer’s care, support and research. Alzheimer’s disease is life-changing for both those who are diagnosed and those close to them. Our support groups provide a place to connect with other caregivers who truly understand what you are going through. The Alzheimer’s Association has chapters across the country. Use the map on the association website to learn about what support groups and education services are available near you.
www.alz.org/care/alzheimers-dementia-support-groups.asp

 

American Cancer Society

Learn about making treatment decisions, coping with side effects, handling financial matters, caregiving, and living well after cancer. The American Cancer Society also has programs and services to help you manage cancer treatment and recovery and find the emotional support you need.  Find out what to expect if you become a caregiver for a person with cancer, and get tips for making sure that you take care of yourself as well. No local groups offered but they do have an active online caregiver support forum.

www.cancer.org/treatment/caregivers

Online caregiver support forum: csn.cancer.org/forum

 

National Kidney Foundation

Our Patient Information Help Line, NKF Cares, offers support for people affected by kidney disease, organ donation or transplantation. It’s designed just for patients, family members and caregivers. Speak with a trained professional who will answer your questions and listen to your concerns. We speak Spanish, too (Hablamos Español). NKF Cares is available Monday – Friday from 9:00 am – 5:00 pm Eastern Time. No local caregiver support groups offered, however the organization may be able to refer you to a local support group.

www.kidney.org/patients

Call toll-free at 1.855.NKF.CARES (1.855.653.2273) or email nkfcares@kidney.org.

 

Amputee Coalition

The Amputee Coalition recognizes the challenges of recovering from a traumatic event such as losing a limb or learning that your child will be born with limb loss. We have embraced peer support as one way to help address these challenges. With over 300 support groups and over 1,000 peer visitors across the country, peer support offers the emotional support, encouragement and information vital for a full recovery. Search the Amputee Coalition website to find the closest support group meeting near you.

Toll-Free: 888/267-5669

www.amputee-coalition.org/support-groups-peer-support

 

Asthma and Allergy Foundation of America

AAFA has educational support groups all across the country to offer emotional support and information about asthma and allergies. These groups host guest speakers, events and more. Each group also has a medical advisor. Check out the website to find a support group near you.

www.aafa.org/page/aafa-affiliated-asthma-allergy-support-groups

 

COPD Foundation

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action — all on your time, at your pace. COPD360social is the COPD Foundation’s way of saying ‘Thank you’ to a community that can make the world take notice of a silent epidemic.

COPD Information Line: 1 866 316 COPD (2673)

www.copdfoundation.org/COPD360social/Community

 

Huntington’s Disease Society of America

HDSA Support Groups are offered by HDSA chapters, affiliates, regions and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader. Use the website link below to find a support group near you.

hdsa.org/about-hdsa/locate-resources

 

The Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society (LLS) Family Support Groups program gives patients and their families a place to go where they can share information, education and feelings in a comfortable and caring environment.

Family Support Groups are for anyone affected by blood cancer and are free. There are currently 230 groups near some of our chapters and in outlying areas, with the number of groups growing each year. Groups generally meet once a month at a library, a local conference room or at LLS’s chapters. Visit the website to locate your local LLS chapter where you can get information about local support groups.

www.lls.org/chapter-selection-page

 

Myasthenia Gravis Foundation of America

The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers.  Support groups are available in select locations across the country. Visit the website to locate the group nearest you.

www.myasthenia.org/CommunitySupport

 

National Alopecia Areata Foundation

NAAF has support groups all over the world. Though they have different sizes, average age and group specific objectives, they share a common mission; to provide individuals with alopecia areata, their families and their friends a safe, comfortable and trusting environment in which to share their personal experiences with this challenging disease. Visit the website to find a support group or event near you.

www.naaf.org/find-support/support-groups

 

National Down Syndrome Society

NDSS has more than 375 local affiliates that provide an array of benefits to help better service the Down syndrome community in their local area.  We view our local affiliates as equal partners working on behalf of individuals with Down syndrome, their families, and the professionals involved with their overall welfare. Visit the website to find support near you.

Helpline: 800-221-4602

www.ndss.org/Resources/Local-Support

 

Spina Bifida Association

SBA’s National Resource Center on Spina Bifida (NRC) provides high quality, confidential information and referral services. Whether you are an adult living with Spina Bifida, the parent of a child with Spina Bifida, or just found out that the baby you are carrying has Spina Bifida, the NRC is here to help.Visit the website to local your local chapter where you can get information regarding support groups and events.

sbaa@sbaa.org, or call 800-621-3141

spinabifidaassociation.org/chapters

 

The National Coalition for Women with Heart Disease

If you’re a woman with heart disease, we invite you to connect with heart sisters through one of WomenHeart’s patient support services. Visit the website to locate support groups in your area.

www.womenheart.org/Support_Networks

 

ALS Association

ALS Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness. Support groups exist entirely for you, the person with ALS, and your family or loved ones. Visit the ALS Association website to locate a support group near you.

www.alsa.org/community/support-groups

 

Foundation for Ichthyosis & Related Skin Types

Individuals with ichthyosis, and parents of children with ichthyosis, often have never met another person who shares the disorder. This can lead to feelings of isolation. The support network gives people an opportunity to talk to others who have experience living with ichthyosis. They can share feelings with others who understand and communicate a positive outlook. Visit the website to get connected with support services for your area.

www.firstskinfoundation.org/regional-support

 

Hydrocephalus Association

It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community. Our network hosts educational events, support group meetings and other gatherings that enable individuals and families to connect. Visit the website to find community support near you.

www.hydroassoc.org/cause-view/community-network

 

The Marfan Foundation

Marfan syndrome is a genetic disorder that affects the body’s connective tissue.  Connective tissue helps to hold the body’s cells, organs, and tissues together and also helps to control how the body grows and develops. Our local groups around the country get together to share experiences, talk about local resources, and have fun. Some of them also do projects to advance our mission. Find out if there’s a group in your area by visiting the website.

www.marfan.org/get-involved/community

 

Muscular Dystrophy Association

You’re not alone in your journey. MDA is here every step of the way, ready to provide resources and guidance, support groups and ways to connect with others online. In hometowns across America, MDA offers support groups — including many that are disease-specific and others that are topic-focused, such as groups for caregivers, parents, grief and loss, transitions, etc. You can obtain local MDA contact information via the Find MDA in Your Community ZIP code locator tool found on the left side of the webpage on the link below.

www.mda.org/services/support-groups

 

The Myositis Association

As a member of The Myositis Association, you are invited to join the TMA Keep In Touch (KIT) support group network. Joining KIT connects you with other myositis patients and their families. When you choose this TMA service, your name, contact information and diagnosis will be added to the list of support group members in your area. Visit the website for support group details.

www.myositis.org/your-myositis-community/support-groups

 

National Hemophilia Foundation

Connect with other families affected by bleeding disorders in your area through NHF’s chapter network by visiting the foundation’s website below.

www.hemophilia.org/Community-Resources/Chapter-Directory

 

National Multiple Sclerosis Society

National MS Society self-help groups focus on support, advocacy, education, wellness or may be more social in nature.  Some groups also serve specific populations, such as young adults, parents with MS, carepartners or African-Americans.  Other groups may have a specific focus, such as physical activity, wellness or healthy living. Visit the website to locate a support group near you.

1-800-344-4867

www.nationalmssociety.org/Resources-Support/Find-Support/Join-a-Local-Support-Group

 

Osteogenesis Imperfecta (OI) Foundation

Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” Support Groups listed on the website represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities. Visit the website listed below to locate the support group nearest you.

www.oif.org/site/FindGroup

 

Sjogren’s Syndrome Foundation

Sjögren’s is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies and lymphomas. SSF Support Groups were created as a benefit for Sjögren’s patients and are only open to SSF members and their family members. These groups, run by volunteers, provide Sjögren’s patients who are SSF members and family members an opportunity to share their advice and tips for living more comfortably with Sjögren’s. Visit the website for a list of local support groups by state.

800-475-6473

www.sjogrens.org/home/get-connected/support-groups/us-support-groups

 

American Brain Tumor Association

The ABTA maintains a nationwide listing of brain tumor support groups, cancer groups that welcome brain tumor survivors, caregiver/spouse support groups and grief (bereavement) support groups.

800-886-ABTA (2282)

www.abta.org/brain-tumor-treatment/brain-tumor-support/support-groups

 

National Parkinson Foundation (NPF)

The National Parkinson Foundation (NPF) has over 1000 active Support Groups throughout the United States and Canada. Most Groups meet once a month, however some groups meet twice a month or even weekly. Since its inception in 1994, the NPF Support Group Network has had tremendous growth. NPF Chapters and community organizations provide access to local resources and services, such as support groups, exercise and wellness classes, education programs and more. Visit the website to find resources in your local community.

www.parkinson.org/find-help/resources-in-your-community

 

Lewy Body Dementia Association

Seeking support? Connect with individuals, families and caregivers who are seeking support during life’s challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of someone diagnosed. Visit the website to find a support group near you.

www.lbda.org/content/local-lbd-support-groups

 

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is an international 501 (c) 3 not-for-profit organization, based in Milford, Connecticut, formed in 1984. Our mission is to provide support, education, and hope to all affected by the pain and disability of CRPS/RSD, while we drive research to develop better treatments and a cure. Members of the RSDSA Community have started support groups throughout the United States. Some meet in person at a member’s home or other local venue. Others meet online or via conference call. You’ll find the groups welcoming to new members. Visit the website to find a support group near you.

rsds.org/find-a-support-group-near-you

 

National Alliance for the Mentally Ill – NAMI

NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. In addition to NAMI State Organizations, there are more than 950 NAMI Affiliates in communities across the country. Visit the website to locate a support group near you.

www.nami.org/Find-Support

Note: Any listings, locations and times subject to change. Call support group for current meeting information. 

If you run a caregiver support group and would like to have your listing added, please contact us here