Centronuclear Myopathy Symptoms, Causes and Treatment Information

What is Centronuclear Myopathy? (Definition)

(Symptoms, Causes & Treatment)

According to the U.S. National Library of Medicine, Centronuclear myopathy is a condition which is identified by muscle weakness (myopathy) and wasting (atrophy) in the skeletal muscles or the muscles used for movement. The severity of centronuclear myopathy varies among affected individuals, even among members of the same family.

People with centronuclear myopathy generally start to experience muscle weakness at any time from birth to early adulthood. The muscle weakness slowly gains over time and can lead to delayed development of motor skills, such as crawling or walking; muscle pain during exercise; and difficulty walking. Some affected individuals may need wheelchair assistance as the muscles atrophy and weakness becomes more severe. In rare instances, the muscle weakness improves over time.

See below for updated news and information regarding Centronuclear Myopathy including new medical research, treatment options and advancements. 

Latest Centronuclear Myopathy Research – Treatment News, Discoveries and Findings

No recent news regarding Centronuclear Myopathy is available. 

Support Organizations

Clinical Resources: Treatment Therapies & Guidelines

healthcare careers

science careers

Clinical Trials – Investigational Therapies

For information on current clinical trials, visit www.clinicaltrials.gov. This is a searchable registry and results database of federally and privately supported clinical trials taking place in the U.S and abroad. ClinicalTrials.gov provides information about a trial’s purpose, who may participate, locations, and phone numbers. This information should be used in conjunction with advice from health care professionals.

For information about clinical trials being conducted at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office:

Toll Free: (800) 411-1222
TTY: (866) 411-1010
Email: prpl@mail.cc.nih.gov

For information about clinical trials conducted in Europe, visit: https://www.clinicaltrialsregister.eu/ctr-search/search

If you have experience dealing with this disease or condition (especially with regard to symptoms, diagnosis, causes or treatment), please share below:

[fbcomments]