CLOVES Syndrome Symptoms, Causes and Treatment Information

What is CLOVES Syndrome? (Definition)

(Symptoms, Causes & Treatment)

According to Nemours Children’s Hospital, CLOVES syndrome is a rare congenital (present at birth) disease that affects the blood and lymphatic vessels, spine, bones/joints, skin and sometimes internal organs.

CLOVES syndrome can be very difficult to diagnose correctly—not only because it is so rare, but also because its signs and symptoms vary quite a bit in the way they occur and how severe they are.

Signs and Symptoms can include:

  • fatty mass in the torso
  • vascular anomalies
  • skin abnormality
  • overgrowth or deformities in the arms/hands and/or legs/feet
  • scoliosis or other spinal problem

 

See below for updated news and information regarding CLOVES Syndrome including new medical research, treatment options and advancements. 

Latest CLOVES Syndrome Research – Treatment News, Discoveries and Findings

Support Organizations

Clinical Resources: Treatment Therapies & Guidelines

healthcare careers

science careers

Clinical Trials – Investigational Therapies

For information on current clinical trials, visit www.clinicaltrials.gov. This is a searchable registry and results database of federally and privately supported clinical trials taking place in the U.S and abroad. ClinicalTrials.gov provides information about a trial’s purpose, who may participate, locations, and phone numbers. This information should be used in conjunction with advice from health care professionals.

For information about clinical trials being conducted at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office:

Toll Free: (800) 411-1222
TTY: (866) 411-1010
Email: prpl@mail.cc.nih.gov

For information about clinical trials conducted in Europe, visit: https://www.clinicaltrialsregister.eu/ctr-search/search

If you have experience dealing with this disease or condition (especially with regard to symptoms, diagnosis, causes or treatment), please share below:

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