Desmoid Tumor Symptoms, Causes and Treatment News

What is Desmoid Tumor? (Definition)

(Symptoms, Causes & Treatment)

According to the Desmoid Tumor Research Foundation, desmoid tumors are very rare tumors that arise from cells called fibroblasts. These fibroblast cells are found throughout our body. Their main function is to provide structural support and protection to the vital organs such as lung, liver, blood vessels, heart, kidneys, skin, intestines etc. They also play a critical role in wound healing. When fibroblast cells undergo mutations they can become cancerous and if they do, they are referred to as desmoid tumors (also known as “aggressive fibromatosis”). Desmoid tumors can occur in most parts of the body

According to the U.S. Library of Medicine, typically, a single tumor develops, although sometimes multiple tumors can occur. Tumors that form in the abdominal wall are called abdominal desmoid tumors; those that arise from the tissue that connects the abdominal organs are called intra-abdominal desmoid tumors; and tumors found in other regions of the body are called extra-abdominal desmoid tumors. Extra-abdominal tumors occur most often in the shoulders, upper arms, and upper legs.

Desmoid tumors are generally not considered cancerous (malignant) because they do not spread to other parts of the body. They can be slow growing or progress rapidly.



See below for updated news and information regarding Desmoid Tumors including new medical research, treatment options and advancements. 

Latest Desmoid Tumor Research – Treatment News, Discoveries and Findings

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Clinical Trials – Investigational Therapies

For information on current clinical trials, visit This is a searchable registry and results database of federally and privately supported clinical trials taking place in the U.S and abroad. provides information about a trial’s purpose, who may participate, locations, and phone numbers. This information should be used in conjunction with advice from health care professionals.

For information about clinical trials being conducted at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office:

Toll Free: (800) 411-1222
TTY: (866) 411-1010

For information about clinical trials conducted in Europe, visit:

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